A Rare Disease That Sounds Like It Belongs in Harry Potter: Pemphigus Vulgaris
It started last year (2017), when I was extremely fatigued for months and couldn’t shake the exhaustion. I slept at night as usual, but had a hard time getting up in the morning. The exhaustion, pain and swelling were always present, and no matter what I tried, the discomfort would not subside.
I went to my primary doctor, who sloughed off my symptoms as being tied to inflammation associated with Fibromyalgia. The doctor told me to take calcium and turmeric and sent me on my way. By December, my gums were very inflamed and my tongue was burning. I went to my primary and again was told that it was from the Fibromyalgia. This time, the doctor gave me thyroid medication for a thyroid condition I didn’t have.
Between January and February, my tongue burning came and went and I had canker sores — or so I thought. The canker sores never fully disappeared. I tried to solve the issues using acupuncture, Chinese herbs and vitamin drips. Unfortunately, the natural route was not working. If anything, it was getting worse. Three different doctors misdiagnosed me again — this time with oral thrush — and I spent a lot of time and money on medications I never needed. I went to six different doctors, three of whom said they didn’t have a clue what I had. With no help or guidance, they gave me Prednisone…
